‘Respect’ is foundational to effective assessment of patients’ spiritual wellbeing. The root meaning of respect – i.e., ‘to look at again and again’ -- is very vivid. There is very little benefit from attempting to assess a patient’s spiritual centeredness or spiritual distress if the professionals responsible for the patient’s care do not genuinely respect the patient.
It should not be taken for granted that caregivers possess the skill/art of truly respecting their patients. I suspect that many caregivers have been born into and/or raised in fairly conservative religious and social settings. I was. In the religious and social setting into which I was born and in which I was raised, I remember being taught to doubt the motives and to avoid taking seriously the ideas of all others who differed with ‘us’. In time I came to see this instruction as instruction in disrespecting others. Variations on instruction in disrespecting others are implicit, if not explicit, to some degree in virtually all organized constituencies or spheres in our society (including the medical sphere).
‘Respect’ does not mean ‘cater to’. It does mean ‘take very seriously’. This clarification calls attention to the rather complicated process by which the attending physician and medical team work with the patient and family/friends in decision-making.
The following set of questions illustrates the skill/art physicians and other caregivers need in order to be fully informed about and respectful of hospitalized patients who are experiencing spiritual distress:
- “What makes for a good day for you?” – with attention given to how ‘good’ is described
- “What are your difficult days like?” – with attention given to how ‘difficult’ is described
- “Do your good days help you make it through your difficult days?” – with attention given to indications of how firm a ‘yes’ is and whether the good:difficult ratio is diminishing
- “Do you more often find yourself waking up in the morning hoping for a good day or hoping not to have a bad day?” -- with attention given to how encouraged or discouraged the patient is
- “What do you want me to know as I and the team consider how best to take care of you? – with attention oriented toward acceptable or unacceptable outcomes rather than toward management plan details
- “What outcomes do you want to keep fighting for?” – with attention drawn to feasible outcomes
- “Are you concerned that your illness will interfere with your participation in any activities or events in the near future that are especially important to you?” – with attention given to what demands these activities or events would make on the patient, to how feasible it is for the patient to participate, to what condition the patient hopes to be in at the time of these activities or events
- “Do you have any questions or worries that are hard to talk about with your family or friends?” – with reassurances that such can be discussed with you in complete confidence
- “Patients sometimes tell me they find themselves thinking ‘that would be worse than dying’. Have you had this thought?” – with attention given to what such conditions would be